Proposed research language

Version 01

Working concepts

Language for what happens
around the patient.

These concepts name forces that are often visible only after a care pathway has already begun to break.

Named so they can be measured, piloted, studied, and implemented.
01

Primary working construct

The hospital-state effect

The change in a person’s internal state caused by entering and remaining within a healthcare environment.

What it names

The care environment is not a neutral container. Waiting, uncertainty, dependence, discomfort, altered time, and loss of control may change the person who must make decisions there.

Governing question

How does the internal state produced by the care environment change a person’s ability to receive, understand, tolerate, and complete care?

What it could make visible

01Bodily state02Internal experience03Time experience04Outside-life pressure05Continuation capacity
02

Primary working construct

The care-seeking threshold

The ongoing boundary a person negotiates while deciding whether to approach, delay, enter, abandon, or continue seeking care.

What it names

Care-seeking is not one decision made at a doorway. A person repeatedly weighs bodily danger against cost, access, legitimacy, time, uncertainty, and the possible consequences of letting care begin.

Governing question

What must become understandable, available, or tolerable before a person can convert a bodily concern into an institutional encounter?

What it could make visible

01Perceived urgency02Cost uncertainty03Access confidence04Legitimacy05Delay and abandoned attempts
03

Primary working construct

The care-retention threshold

The point at which a person repeatedly determines whether remaining inside a care process is still possible.

What it names

Entering care does not guarantee that a person can stay. Outside obligations, uncertain waiting, transportation, work, dependents, cost, discomfort, and loss of agency may make leaving feel increasingly necessary.

Governing question

What pressures might make remaining in care harder than leaving—and can they become visible before the patient reaches the exit?

What it could make visible

01Leave-by time02Outside obligations03Waiting uncertainty04Perceived agency05Pressure to depart
04

Related patient-centered systems construct

Care pathway integrity

The degree to which a person can enter, remain within, complete, and continue the necessary stages of care without preventable breakdowns in access, capability, timing, information, responsibility, or practical execution.

What it names

Continuity of care can describe coherent relationships, information, and management. Care pathway integrity asks the larger patient-centered question: did the whole pathway remain traversable in the person’s actual life?

Governing question

Did the healthcare pathway remain intact long enough for the person to receive the care they needed?

What it could make visible

01Entry and retention02Clinical capability03Timing and access04Information and responsibility05Completion and fallback

A necessary distinction

Care can be professionally arranged and still fail to become traversable.

Continuity of care asks whether relationships, information, and clinical management remain coherent across time and professionals.

Care pathway integrity asks whether that care remained reachable, timely, understandable, executable, and complete in the patient’s life.

These are proposed working concepts—not finished diagnoses.

01Named02Measured03Piloted04Studied05Implemented
Research and clinical collaboration